I’m back. I’m back in so many ways. I started blogging ten years ago as a method of coping with a new situation, my diagnosis of chronic leukemia. Been a long crazy road, picked up a few readers, made a few jokes, shared when I though doing so would go beyond narcissism and platitudes. And then life returned. And then it didn’t. My life has entered a new bizarre phase, I hope I can write about it without relapsing in maudlin cliche. I learned along the way we all suffer, that my misery, while odd, is part of the human existence .
Things changed. I was working part time, but feeling weaker. I started losing weight. My leukemia is gone, but its ghost , GVHD lingers, stiffening my skin, choking my breathing.
And then, crisis.
Marriage, as I know it, has had clear stages. You meet, you fall in love, you may have kids. You may divorce. If you hang around long enough, on one inevitable day, if you’re lucky, you say goodbye. I said goodbye to Cyn a few weeks back. Despite all we’ve been through there was always the expectations that there would be an afterwards, time to reflect and heal.
I said goodbye to Cyn the other day.
Hospital. Pneumonia. Unbeknownst to me, I was retaining CO2. I was suffocating but in no distress.
I remember little. I remember driving to the hospital, telling Cyn I was ready to die, life has become low level discomfort punctuated by hospital visits every few months. I was ready to go
I remember Cyn’s crying face “they want to intubate you. I told them no, what do you think?” Odd bitter irony! The one moment you need to make the ultimate existential decision is when you are confused, tired. “I want more time” I said, stalling to see what came next. My next thought was how much I’d miss her , but of course, I wouldn’t miss her at all. Cyn turned to the intern "he is DNR. DNI." “Well you’ll need to put it in writing” the intern said. On reflection how odd. You’d think the house staff would welcome avoiding the complications of putting someone on a ventilator . “ Fine” Cyn said. Ted ,my oncologist ,called annoyed . “ This is not fatal, this is reversible” he told her. Once again, amusement on my part. He has no way of knowing my current quality of life. Who is this pisher making life decisions for me?
Cyn holds firm. She says goodbye. to me. She is exhausted. I flash back on the death bed scene from Love Story when Ollie gets into Jenny’s hospital bed and she dies in his arms . I was a tangle of tubes and wires, it would have been impossible. I remember putting our cat to sleep. The Vet had a “bye room”, furnished like a hotel room where one holds ones pet as the pentathol flows. Clearly American hospitals need bye rooms.
Cyn leaves. I lose consciousness peacefully. I am warm, I am loved, I will be missed, but Cyn will be OK.
And then. And then. I’m in a hospital room and the house staff is poking me.” Dr Weinreb, Dr Weinreb. Where are you? “Hospital”. Why is this a special day? “Because the patriots just won the superbowl ”. ( no kidding). I must admit, I was a little annoyed at being woken from eternal tranquillity to be quizzed on sports trivia.
It’s two weeks later. Life feels differently. I feel as if I died and the afterlife bears amazing similarity to the one I just left. Cyn is so tired and has full blown PTSD.
What have I learned? DOCUMENT YOUR DNR orders. I have learned to be wildly excited by simple stuff. I walked 3/4 mile yesterday without oxygen and felt as if I had just run and won a marathon.
The hardest part of the afterlife is letting hope back in. I need to hope that perhaps I could..,..return to work.....maybe take a trip. Otherwise life. Is just cans of ensure and constant frantic motion.
I have much to say. Will say more tomorrow.
Wednesday, January 6, 2016
“Stay strong, brother.”
I smiled weakly. Certainly, he deserved acknowledgment. He was reaching out, trying to be encouraging, supportive, and friendly, but I was late.
I was late because I had driven to the wrong site for my Reclast infusion. I drove to Hartford Hospital through treacherous morning traffic, pissed I was late due my own ineptitude. I wasn’t going to cope with employee parking, either. Every orthopedist thinks he or she is Dale Earnhardt.
So, I drive up to the Valet parking.
A young kid (these days, anyone under 32) runs to my car.
I’m here for my treatment at the cancer center, ” I say. “May I park here?”
He gives me a sad look. "Sorry, its no longer free…” he trails off, not finishing the rest of the sentence, "... For you cancer warriors." I did actually think parking was free.
“Fine,” I say, “Thanks.”
I jump out, and head for the Helen Gray Cancer Center
Stay strong, brother” He calls after me.
“Stay strong brother” the statement carries dread and peculiar emotional weight.
I’m pretty sure, “stay strong brother” Is not the response when a patient pulls up and says:
“ I’m here for the AA meeting, where can I park?”
“Where is Diabetic training?”
Or even (and this is weird)
“Where do I park, I have an appointment at the Chronic Heart Failure Infusion suite?”
Why do I get a free ride?
More to the point, why don’t I stop and say, “Oh no, you misunderstand, I had cancer, Now I’m in remission, and prednisone has caused osteoporosis, so I need a Reclast infusion.”
That’s why I am here. In my mind, Cancer is a tragic but non-lethal disease that leaves its victims sadder but much wiser. Fighting cancer apparently was the only way I could have gotten a New York Times Op Ed piece. I would not have been published if my piece began,
“ I have ambivalent feelings about my job.”
I would not have been published without help from friend Judith, but that’s another blog.
Cancer is less lethal than end stage chronic heart failure,
“ I spend one hour a week receiving infusions that permit me to live a few years more, because circumstance beyond my control has denied me the chance at a heart transplant and survival.”
Oh wait… Judith, you reading this?
In my 30 years in medicine, the death rate among those receiving infusions for CHF is still 100%, while the survival rate for chemo insensitive CLL has gone from 0% to… well, much more.
Cancer may be a serious disease, but curable ( ptoo ptoo) in 100% of the bodies in which I have inhabited.
Prednisone, on the other hand, is a tablet of pure misery, Satan’s own Pharmaceutical. Prednisone has ravaged my body , turning my skin to paper and my lenses to opaque, cataract -clouded stones. Prednisone has dissolved my bones giving me a T score of -2.7 ( look it up, on a roll)
Since my hip bones will transform into chalk within 5 years, I receive Reclast, a bi phosphanate. It binds to the bones, and makes difficult for our osteoclasts (cells that remodel our skeletons ) to destroy our lovely bones.
There is a wonderful aside here about how plumbers discovered that bi phosphanates unclog soap- clogged (read calcium- containing compounds) pipes. That’s for another time.
Cancer has become a lovely, benign tool for me. This reminds me of Curb your Enthusiasm when Larry David discovers that saying, “ I can’t come because my father just died” is such an effective dodge that he uses it well after Shiva is over.
When must someone stop play the cancer card? When Chemo is over? That’s true at the Farber, where suddenly parking is no longer free.
Must one return to the banal world of the cancer-deficient after one has a statistically good chance of long-term survival? For me, that was ( ptoo ptoo) over 2 years ago.
Or, is cancer like the military, 20 years after the battle is over, one can still get a Free sundae at Friendly’s on veterans and I presume, cancer survivor day?
I’m cranky these days from a withering combination of my medications, the effects of prednisone and the overall irreversible bodily mayhem that occurs even years after treatment.
I have the lungs of an 80 year old, and, believe me, after a day of seeing a mandated 2.2 patients an hour, those 80 year old lungs are fighting for survival.
Is it fair for me to say, “I just can’t see another patient, Olga, it’s...”
“I know, Doctor Weinreb. Stay strong.”
Thursday, December 24, 2015
You probably know about Mr. Shkreli. He is the 32-year-old Wunderkind and hedge fund manager who cornered the market on Daraprim, a medication that among other uses, is a treatment for AIDS patients with toxoplasmosis. His pharmaceutical company became the world supplier for Daraprim, and raised the medication to $750 a pill, triggering worldwide outrage and a series of sarcastic op Ed pieces. These pieces all ran along the lines of ” Now that he needs a lawyer, let's charge him $ 10,000 an hour for legal help.”
Ah Gail Collins, you cut up, you.
Why the anger? Could it have stemmed from the Uber self-indulgent you tube videos of him in his Manhattan apartment, blathering on about life as seen through the eyes of a drunk 32 year old Plutocrat?
Is our scorn based on the concept of cornering the market in a precious commodity?
American history is filled with those who have done so with varying degrees of success and/or fame. Jay Gould cornered the gold market a century ago. The Hunt brothers did the same in the 1970s in the silver market.
In any event, we glorify those scoundrels who have the knowledge and intestinal fortitude to corner commodity markets.
From Ohio Mister Thorne
Calls me up from night 'til morn,
Mister Thorne once cornered corn and that ain't hay.
But I'm always true to you, darlin', in my fashion,
Yes, I'm always true to you, darlin', in my way.
--Kiss me Kate ( as if you didn’t know)
I’m terrified when scarce drugs suddenly become unavailable for obvious reasons. I occasionally lose my bottle of Rapamune, a GVHD suppression drug, and I have a buy a few to tide me over. They’re $50 a pill because only one company makes then… well, they’ve gone generic, so Sirolimus is somewhat cheaper. I understand the terror of develping toxoplasmosis, an insidious parasite that grows in the brains of the immunocompromised. Daraprim is the accepted treatment and now unavailable Fortunately, as is almost always the case, substitutes exist, so when I develop toxoplasmosis from cleaning the cat litter, I can probably get by with Bactrim.
Mr. S isn’t alone charging outrageous fees for medications. Amoxicillin costs 2.5 cents a pill to make. CVS sells 20 Amoxicillin for $ 48.50, or about 2.40 a pill, a mark up of 1000%. Daraprim sold for 17 dollars before Mr. S bought the company he charged $750 a pill, about 1/ 2 of the CVS mark up. I don’t see any of us protesting CVS, although we should for so,so many reasons.
But this case deeply troubles me because I feel we ( that is me, and you, dear reader, who I hope has a soul, a sense of justice and right versus wrong) are partially responsible for this sad situation.
First off, Amorality doesn’t evolve in a vacuum. No one sat Martin down as a child and said,
“Martin dear, just because something is LEGAL doesn’t mean it is MORAL and you should do this. “
Did the guy ever go to church or Synagogue? (I’m afraid to look up which) Didn’t his parents ever read little Martin he teachings of Robert Fulgrum whose cliché ridden “What I leaned in kindergarten” should be taught at Business schools across the country because his preaching, although treacley, is sound.
I believe Baruch College ,where Mr. Shkreli leaned his moral compass, should have told him:
1. Share everything.
2. Play fair.
3. Don't hit people.
4. Put things back where you found them.
5. CLEAN UP YOUR OWN MESS.
6. Don't take things that aren't yours.
7. Say you're SORRY when you HURT somebody.
And then Mr. Trump hits the national stage. He is a creation of the times in which we live. He is a hero to multitudes even though he is the sort of person the devil assigns to you in the next world to pay for a life of greed, selfishness and close-mindedness.
Trump is an idol, even though his high rise on central park south (Legally) blocks out the light for several buildings that once fronted the park. This wasn’t so bad, I guess until Mr. T hung a sign that said “ Go Fuck yourself , don’t you wish you lived here?” ( I paraphrase, but that’s really what it said) and made sure it faced the blotted -out building behind his. The man has infringed on more air rights than a Sicilian at a cocktail party ( is this racist? They tend to be close talkers, as a people.)
The second reason we have to give Mr. Shkreli a pass is that he was doing what he was trained to do : Find a vulnerable market and exploit it. I suspect all first year Harvard Business school students are taught a course titled “ Exploring and capitalizing under -utilized markets” but should probably be called ,“screwing the poor and ill for fun and profit ”
The metaphorical blood is on our hypothetical hands because we have allowed big business to control our health care system
Properly done, heath care is a money-losing proposition. Hartford Hospital ( losing 30 million this year) has a full trauma operating room running 24 hours a day. If your car is T boned on Interstate 91 at 3 AM, rest assured a capable vascular surgeon will be available to sew you up. An OR costs about 2,000 dollars an hour to run even if no surgery actually done, and someone have to pay that bill.
We are at fault because we haven’t demanded a single payer system for health care for everyone . The thought of veterans dying in the snow because they didn’t have health care is so repugnant to us that we have built an entire VA system that insures this won’t happen. If you served your country we won’t let you die in some hospital parking lot after being T Boned on the Highway. We wont let a veteran die of Toxoplasmosis either, for that matter, if we can help it.
This whole sorry Shkreli affair could not happen outside the US, where the government tightly controls health care.
If Britain needs more Daraprim, they’ll pay someone to make more. The Republican Party, home of Mr. T, insists people take responsibility for their own healthcare. Everyone has a duty to make sure he or she is covered ,or suffer the consequences It’s all fun and games until a non veteran lacking health insurance gets T Boned on Interstate 91 at 3 AM and is brought to Hartford hospital.
“You don’t have insurance? You’re not a Veteran? Hm,.. you better go bleed to death in the parking lot.”
That’s not going to happen.
So much of what’s wrong in this country is a result of our own inability to protest evil when we see it. I think of the late great Phil Ochs’ “A small circle of friends”
Oh, look outside the window
There's a woman being grabbed
They've dragged her to the bushes
And now she's being stabbed
Maybe we should call the cops
And try to stop the pain
But Monopoly is so much fun
I'd hate to blow the game
And I'm sure
It wouldn't interest anybody
Outside of a small circle of friends
Ridin' down the highway
I don’t have to add that Phil killed himself a few years back.
What about those poor German civilians who watched in horror as the Russian army invaded Berlin? What about the atrocities visited upon the women ( as another aside read “All the light we cannot see” for a horrific depiction of that small holocaust)
The German civilians must have cried out as the Russians tortured them at the end of World War II, “Its not us! Hitler wasn’t our idea! We are innocent.”
What’s our excuse for watching so much brutality and cruelty evolve in our country? Why don’t we protest the gun lobby and the private health care industry? Why don’t we really, really care when AIDS patients can’t afford their medication? We don’t care until tragedy befalls us. Jim Brady didn’t give a whit about gun control, until John Hinckley tried to blow his head off. Too little too late, Jim?
I fear my life is spent
No one is innocent
--urinetown ( it’s on i tunes, , I guess)
Martin Shkreli sprang from our loins. He capitalized on a weakness in the system, exploited the poor and ill in a way that should make his business professors proud and the rest of us a little unnerved
You taught me to talk
And the benefit is
I know how to curse
---Calliban from the Tempest
Friday, December 18, 2015
The Whitney was crowded but I felt fine. The Whitney Museum of American art recently re opened in downtown Manhattan after a long run on the Upper East Side. I missed the Whitney. My old friends, the Hoppers, the Picassos and the absurdly obscene instillations were back on display. I roamed room-to-room seeking out my old pals. I ran into my old friend George Bellows and we both watched the Dempsey – Firpo fight.*
This was a new experience Not the art, but the disorientation of being well. Chronic disease is a constant logistical battle. The mind spins with desperate, absurd, surreal questions. Where is the nearest bathroom? Sip of water? Where can I lie down if/when I feel sick? If I had to leave, where is the nearest bed? The nearest hotel room, the next train back home? Each medication carries its own cacophony of side affects and Graft versus host disease is like firing a machine gun into the night. You don’t know where the next bullet will hit but when it does, there will be pain. Will my 4 ½ year old white cells declare Fatwa against my liver again? My mouth? My skin?
The battlefield was clear today. The analogy of cancer to war is excellent: You win the war but the insurgents hole up and occasionally descend into town, taking no prisoners and raising havoc, when you were certain peace had been declared .
But oddly, this piece isn’t about me. It’s about Cynthia.
Dear Cynthia , who stood by me for the past 8 years of this non ending psycho and melodrama.
Now its her turn to search for the closest place to find cool water, a life saving snack, a clean and near-by bed.
Her destroying angel came in the form of Spondolithiasis. For years her back had slowly dteriorated. If the spine is a stack of quarters, her spine was more like a game of Jengah where the wooden sticks are pushed askew. Eventually the stack collapses, the game is over, and it’s time for serious surgery. Six weeks ago she had back surgery where surgeons trimmed the overhanging vertebrate that were pressing on her nerves. The surgeons then made a paste from her bones and spackled the transformed spine to rebuild the whittled column that had been her backbone.
Back at the Whitney, I rush over to greet my old fried Frank Stella, who is hanging out against a wall . Cyn follows behind, walking slowly, pain etched on her face.
“What’s wrong?" I ask from reflex. I know that face , the one that means “I’ve hit the wall, I’ve overdone it and I need to retreat.” I have a similar face.
And I want to say “I know how you feel. I know exactly how you feel. I know what it’s like to be 77 miles from your bottle of pain medication and realize you must spend the next 4 hours seeking out and returning with the life saving elixir.
I don’t want to say “I know how you feel” because she’ll say, “You can’t possibly know.”
The conversation will degrade into a sad rumination on who suffers more. Please, Cyn not in front of Frank
I an amazed and terrified by the similarities of our experiences, the feeling one can’t go another step, the nihilistic feeling life will be a series of painful moments, unending until the grave’s perfect peace.
She makes the same ridiculous statements I used to say. “I’ll never be better.” “ I’m sure the treatment didn’t work, They’re lying to me.”
I find myself having doppelganger conversations:
“I’ll never feel better again”
Of course you will
No, no, I will never feel whole again
Of course you will
It is as if we are auditioning for the same role in a play and we pass the script back and forth to see who sounds more sincere in each role.
Cyn has taken on a dreadful habit I once enjoyed: She wakes and rates the day ‘ Today will be a B-. Today will be an F. I once did the same. No need now, I’m settling into that B+/A- state that's good for most but will keep you out of medical school.
What amazes me is that Cyn and I are so different. I am everything she is not. I am maudlin , vindictive , sentimental and self pitying. Cyn exudes confidence and calm, her father’s eys looking out at world from which he has departed. Cyn and her dad hate self pity, I turned it into an Olympic event.
Cyn was recently named VP of primary care at our hospital. She has done an amazing job reigning in and soothing the 4th grade fragile yet preposterously self important egos of most docs. Had I been given the position, I would spend my time evening up the score, firing anyone who had offended me over the past 18 years. I'd soon be alone.
My self pity led me to believe there is nothing, save the suffering of one's child , than one’s own suffering. I have always felt the Deity singled me out for some karmic retribution, that is, until I tell someone of my fate and he or she replies with a tale so grotesque and horrible I am driven to ashamed silence. I am merely miserable; I am not among the horrible.
I feel that life is divided into the horrible and the miserable. That's the two categories. The horrible are like, I don't know, terminal cases, you know, and blind people, crippled. I don't know how they get through life. It's amazing to me. And the miserable is everyone else. So you should be thankful that you're miserable, because that's very lucky, to be miserable.”
But there is something worse than one’s own suffering. The suffering of one’s mate is far worse.
In suffering one has pity, one has carte blanche to be sad and bitter, to lash put against loved ones, to transgress in a million innocent and not so inniocent ways . There is perfect peace in being terminally ill, as I learned when my disease roared back and I was beyond chemotherapies’ ambivalent but sometimes helpful grasp. . I have known all of Kubler Ross’s stages of grief, even the last stange, acceptance ,which is not acceptance in the positive, life affirming style but the feeing the mouse feel’s as she is borne from earth in an eagle’s mouth.
Once upon a time I ached over my neoplastic fate, the pain of cancer therapy, of relapse, of endless side effects. Cyn was there every step of the way. Now I know the utter helplessness of watching one's loved ones suffer, knowing there is nothing, really, that can be done to assuage her pain.
Now its my turn to ache again, over the sufferings of my dearest.
Update: Just got back from the orthopedist. Mike is a jolly, reassuring guy, who reviewed Cyn's X rays and said " You' re doing great"
ptoo ptoo ptoo
Maybe life is retiuring to the daily disater of mere misery. I hope.
* A tad obscure. Sorry. George Bellows (1889-1925 American painer. Paineted Dempsy Vs Filpo ( 1924) Love the pic because Bellows is the bald guy to the left. I live my life for inside art jokes.
|George Bellows/ He's the bald guy on the left|
|Jenga. That's What Cyn's spine looked like|
Sunday, May 31, 2015
He was fighting a losing battle against cancer and was receiving experimental chemotherapy. His spouse demanded everything be done to keep him alive. “He’s too young to die, we have small children,” she sobbed. I suggested making him DNAR, do not attempt to resuscitate, and she became angry.
“Boston tells us the chemotherapy might work, and if you make him a no-code, you have extinguished any hope we might have.”
The Hospital called. He was failing. He was on pressors, intravenous medicines used to maintain blood pressure at times of crisis.
“I’ll come right down, “ I said. I would speak to the spouse, discuss the perils of being a patient with advanced cancer who underwent cardiopulmonary resuscitation.
By the time I arrived at the intensive care unit, he was gone. He lay on a gurney, eyelids open, eyes bulging from their sockets from the 30 minute-long attempt to retrieve him. His expression was one of abject terror.
His arms were swollen and bleeding, stigmata from multiple attempts to insert 18 gauge needles as he lay dying. I beheld a scene of un imaginable violence.
My patients with advanced disease who undergo in-house CPR share a common fate. They all die alone, without family in attendance. When CPR begins, the family is hustled out, useless civilians driven from a battlefield, an alien arena in which they are useless.Worse, their weeping and attempts to comfort their loved ones makes resuscitation hazardous for patient and family members alike. One cannot embrace a loved one receiving a 360 joule electro conversion shock.
I am wary of buildings bearing messages, Work Makes One Free, Ignorance is Strength, but the portal to every Medical school and hospital should bear the warning:
Death is not the enemy, Suffering is.
Modern medicine has forgotten this simple truth, at our own peril.
I have taken to making house calls. Some patients are bed bound, so I throw my stethoscope in the Honda, don a white lab coat and drive Connecticut streets, seeking my wayward patients.
The results have been startling.
I enter a house. The patient lies in the living room, in a hospital bed, dying.
In our storied past, loved ones died of old age. Once upon a time, we died at home. We died upstairs in the master bedroom, covered in a hand -made quilt as family members said goodbye, reminisced, shared the vigil against encroaching night.
Nowadays, no one dies of old age. The term itself has become vaguely grotesque, politically incorrect, and pessimistic. Patients die of atypical tuberculosis, protein wasting syndrome and immunodeficiencies, By giving name to these conditions, we imply that treatment, and hence salvation, exists.
I blame Dylan Thomas. We have taken his admonition to rage against the dying of the light to heart
Family members approach me. “ What did Boston tell you?” Boston, medical Mecca, has become shorthand for, "the place where my loved one will receive a lifesaving diagnosis and treatment.”
I blame ourselves as medical providers. We sometimes encourage futile therapy, claiming to restore hope but forgetting that the new proposed therapy has the slimmest chance of success, at the expense of additional suffering for patient and family.
Insurance companies’ policy rates are skyrocketing. I am not excusing their behavior but rates increase when we decide as a culture that a brain MRI or 30 minutes of a cardiopulmonary code would be more therapeutic than soft classic music in an upstairs bedroom where the lights are low and the air smells of lavender lotion.
To be fair, we are staring to recognize that a patients’ death is not necessarily an indication of our failure.. We now use the phrase: Do not Attempt to resuscitate, rather than Do Not Resuscitate. This subtle shift suggests there is no magical procedure to return our loved one from the banks of the River Styx. We need to teach our medical students that every patient will eventually die, will eventually fail to respond to any number of expensive treatments and uncomfortable testing.
This raises the point: Is Cardiopulmonary Resuscitation ever useful, especially for patients with cancer?
The answer lies in a patients’ health prior to CPR. If an otherwise healthy patient with cancer ( or without cancer, for that matter) suffers a cardiac arrest, CPR offers a reasonable chance the patient will leave the hospital alive. For debilitated cancer patients (defined as those who spend at least 50% of the day in bed) a 2002 study pronounced Hospital based CPR “ Futile.”
I have been fighting Chronic Lymphocytic leukemia since 2007, and underwent a stem cell transplant in 2011. I wrote of my disease and the need for universal vaccinations in a 2011 New York Times op ed piece. I wrote that cancer taught me the value of community. Cancer has now taught me that death is not the enemy, suffering is. I am in remission ( excuse me, Ptoo ptoo) but suffer daily from Graft verses Host disease, an insidious syndrome in which my donor cells attack my own innocent tissue. I have experienced days so pain filled that I wished I could end my suffering in any way possible. I don’t mind dying, I dread suffering, especially without a reasonable expectation my misery will end. I view CPR for the terminally ill as a form of needless misery.
My patients are becoming more involved in their healthcare. They demand that I review their CT scans and blood work with them. I see real irony here, but I also see a chance for improving health care delivery. My patients panic when their MCHC (mean corpuscular hemoglobin concentration) is elevated. They want to know what that means, The honest answer is “if you are not anemic, an isolated abnormal MCHC doesn’t mean much.” I wish they showed as much interest in their DNAR status. We ask our patients to sign DNAR papers which describes CPR in the mildest terms . Our form reads, in part
if you stop breathing would you allow a tube to be inserted into your throat?
These forms should be more honest and more accurate. They should read:
The chance of survival in any patient with any terminal disease who undergoes an insertion of a breathing tube and the application of electrical shock to the chest is essentially zero. During this attempt at resuscitation, you may experience pain, anxiety and fear. If you require the insertion of a breathing tube, your family will be forced to leave the room and there is a possibly you will die in pain and without loved ones around.
I contemplated requiring all patients requesting “ full code status, no matter what” to watch a video of a patient undergoing CPR, but that would be too gruesome to watch. Viewing such a video could produce its own suffering.
If I were hospitalized because my cancer had returned, I am certain I would request DNAR status .
A Johns Hopkins study found 90% of all graduates from the Johns Hopkins school of Medicine would decline CPR unless they had an acute, treatable condition. We physicians have run or watched too many attempts at cardiovascular resuscitation to want this procedure performed on us.
When my time comes, I want to die in my bed, the sound track of Kiss me Kate playing in the background, a generous dose of morphine and Ativan soothing my central nervous system and the healing scent of chicken soup wafting up from the kitchen. Wouldn't you?