Thanks,
Aunt Nancy for the mot juste.
I
love Nancy. She is my wife's Aunt. Nancy has been a devoted blog reader since I began writing
these in 2010.
She
lives in Vermont with husband Miles. We were
visiting the other day. Since my last hospitalization, we have felt the need to
see family.
Over
simple lentil soup and turkey sandwiches,
Nancy turned to Cyn and said “You have complicated lives.”
This opened a floodgate. We’ve used endless,
sad adjectives to describe our fate We
cannot shake the suspicion that at some point in history, I, or one of my past incarnations
, stole a golden monkey from a mummy’s tomb or mocked a blind gypsy woman.
Karma’s a bitch.
“Why us?” Cyn asks. “Why have we been saddled with an unending
succession of treatments, side effects, and infections?”
The
real question is: “Why not us?” Nancy has
a complicated life. Her mom lived well into her 90s and was severely debilitated
for much of her final decade. Nancy couldn’t travel far from Burlington, she
spent much time caring for her mom. Nancy
had a rocky childhood.
It’s
a vicious cycle. Our friends express pity, and this feeds back and amplifies itself
into prolonged attacks of anger and despair. Why bother when the Universe gives
you the middle finger?
I
am now on disability leave, vowing to return to work. At work, my patients express a similar
sentiment. “We feel so bad for you, Dr. Weinreb. We are praying for you.”
They
ask how I am doing.
‘”
Well,” I complain. “The medication to
control the GVHD isn’t working, and I am short of breath.” I then realize I am talking to someone who just
lost her husband of 40 years.
“I’m so sorry for your loss,” I say, when I suddenly
remember, pulling myself back from the abyss of self-pity.
If only a non-judgmental, non-angst-laden
word existed to describe our current situation.
The
word is “complicated.” Our lives are complicated. I
spend my days taking pills, giving myself insulin shots and pouring 40 ounces
of formula through my G tube to gain back the 30 pounds I lost. Cyn is burdened
with making sure I don’t accidentally kill myself, a situation that arises far more
often than you would think.
My life is complicated but I am not disabled.
We just saw daughter Abby and boyfriend Sam and his parents. We visited dear Aunt Nancy and Uncle Miles. There were moments
of joy interlaced with the complexities.
But,
the point is, everyone has a complicated life.
Cousin
Carol cares for my elderly Aunt.
We
all have complicated lives. Our pain is
not unique or special. It is time consuming, but my children are healthy. I
know several people who spend their
days caring for sick children We all have
something.
Cynthia
and I derive comfort from Nancy’s definition.
Our
lives are complicated. Everyone’s life is.
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